Louisiana Sickle Cell Commission public meetings in 2020
10 substantive meetings from 2020, with official agendas or minutes and plain-English summaries.
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission will hold its December 8, 2020 meeting via teleconference/video conference instead of in person, citing the governor's COVID-19 emergency proclamation and state quorum requirements. The agenda contains only procedural and access information; no substantive business items are listed.
- Meeting moved to virtual format due to COVID-19 public health emergency
- Meeting URL: https://ldhophbfhgenetics.zoom.us/j/87951800540
- Dial-in: (602) 333-0032, conference code 532143
- Contact: Jantz Malbrue, 504-568-2644, [email protected]
- Commission created under Act 117 of 2013 Legislative Session
The commission discussed updates to its strategic plan regarding medical services, patient navigation, and education. Members proposed new guidelines for emergency department triage and the development of a transition toolkit for youth. No formal votes were recorded for the proposed initiatives.
- Proposed a study to review emergency room wait times and triage guidelines for sickle cell pain crises
- Proposed the development of an instrument to track emergency department utilization
- Proposed educational training for providers to reduce drug-seeking stigma
- Discussed target audience and learning objectives for the 2021 Statewide Conference
- Tentatively scheduled 2021 quarterly meetings for the 4th Tuesday of March, June, September, and December
- Requested nominations for 2021 chair and vice-chair seats
Louisiana Sickle Cell Commission
The commission reviewed the SECURE-SCD registry for COVID-19 cases and the development of a new case management system via Social Solutions. Members discussed barriers to new therapies, including insurance and transportation issues, and the potential use of Project ECHO for provider engagement. No formal votes were recorded for the items discussed.
Louisiana Sickle Cell Commission
The commission is utilizing teleconference or video conference for its October 27, 2020 meeting. This change is in response to Proclamation Number JBE 2020 – 30 regarding the COVID-19 Public Health Emergency.
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is holding a virtual meeting. The provided agenda contains only procedural and scheduling information.
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is holding a meeting on July 29, 2020. The agenda provided is procedural and does not list specific discussion items or decisions.
Louisiana Sickle Cell Commission
The commission is meeting via teleconference or video conference. This change is in response to Proclamation Number JBE 2020 – 30 regarding the COVID-19 Public Health Emergency.
Louisiana Sickle Cell Commission
The Commission reviewed COVID-19 data for sickle cell patients and discussed implementing a statewide telementoring program and pain management tools. Members also noted the passage of House Bills 591 and 819 regarding commission membership and medical marijuana access.
- Approved meeting minutes from March 25, 2020
- Noted House Bill 591 signed by Governor to expand commission membership
- Noted House Bill 819 passed to include sickle cell as a chronic pain condition for medical marijuana
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is holding a meeting. The session is being conducted virtually due to the COVID-19 LDH Public Health Emergency.
Louisiana Sickle Cell Commission
The commission reviewed COVID-19 resources for the sickle cell community and discussed strategies to improve patient care. Discussions focused on expanding surveillance systems, improving pain management protocols, and increasing provider education.
- Approved meeting minutes from September 10, 2019, and December 10, 2019
Louisiana Sickle Cell Commission
The commission is utilizing teleconference or video conference for its March 25, 2020, meeting. This change is in response to Proclamation Number JBE 2020 – 30 regarding the COVID-19 Public Health Emergency.