Louisiana Sickle Cell Commission, LA
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Recent meetings
Thu Jul 30, 2026
Louisiana Sickle Cell Commission
Louisiana Sickle Cell Commission to review bylaws, vacancies, and 2026 legislation
The Louisiana Sickle Cell Commission is meeting to discuss revisions to its bylaws, review current vacancies for members including a parent of a person with SCD, a person with SCD, a medical professional, and a representative from Southwest Louisiana Sickle Cell Anemia, Inc., and receive reports on the SCD Registry, legislation (including 2024 Acts 375 & 748 on SCD training for school nurses and 2026 Act 533 on LSCC membership), and workgroups on data, medical services, patient navigation, and education.
- Revisions to LSCC Bylaws under New Business
- Current vacancies: parent of person with SCD, person with SCD, medical professional, Southwest Louisiana Sickle Cell Anemia, Inc. representative
- 2026 Regular Session Act 533 on LSCC membership
- 2024 Regular Session Acts 375 & 748 on SCD training for school nurses
- Reports from Data & Surveillance, Medical Services, Patient Navigation, and Education & Advocacy workgroups
sickle-cellcommissionbylawsvacancieslegislationpublic-health
📄 From the agenda
Extracted text of the official agenda document (automated extraction — may contain OCR/formatting errors).
Jeff L
andry
GOVERNOR
State of Louisiana
Louisiana Department of Health
Office of Public Health
Bruce D. Greenstein
SECRETARY
Bienville Building ▪ 628 N. Fourth St. ▪ P.O. Box 3214 ▪ Baton Rouge, Louisiana 70821-3214
Phone: (225) 342-8093 ▪ Fax: (225) 342-4848 ▪ ldh.la.gov
An Equal Opportunity Employer
AGENDA
I) Call to Order
II) Roll Call
III) Public Comments
IV) Approval of Minutes – June 4, 2026
V) Mandate Review & Announcements
• Revised Statute 40:1125.1
• Current Vacancies
One parent of a person diagnosed with SCD
One person diagnosed with SCD
One medical professional caring for persons diagnosed with SCD
One representative from Southwest Louisiana Sickle Cell Anemia, Inc.
VI) Old Business
VII) New Business
• Revisions to LSCC Bylaws
VIII) Reports
• SCD Registry
• Legislation
2024 Regular Session: Acts 375 & 748 | SCD Training for School Nurses
2026 Regular Session: Act 533 | LSCC Membership
• Data & Surveillance Workgroup
• Medical Services Workgroup
• Patient Navigation Workgroup
• Education & Advocacy Workgroup
IX) Public Comments
X) Adjournment
Note: The order of the agenda may not be followed exactly, to accommodate presenter schedules. Presenters, members, and guests may
submit requests for accessibility and accommodations prior to a scheduled meeting. Please submit a request to [email protected] at least 2
weeks prior to the meeting with details of the required accommodations.
In lieu of verbal public comment, individuals may submit a prepared …
Excerpt truncated on this listing page. Full text →
Thu Jun 4, 2026
Louisiana Sickle Cell Commission
Louisiana Sickle Cell Commission to review vacancies and workgroup reports
The commission will discuss current membership vacancies and new business regarding the Etta Pete Sickle Cell Anemia Foundation and Southwest Louisiana Sickle Cell Anemia, Inc. The body will also receive reports from five specialized workgroups including Patient Navigation and Education & Advocacy.
- Review of four vacancies: one parent, one person with sickle cell disease, one medical professional, and one representative from Southwest Louisiana Sickle Cell Anemia, Inc.
- New business regarding Southwest Louisiana Sickle Cell Anemia, Inc. and Etta Pete Sickle Cell Anemia Foundation
- Reports from the Sickle Cell Disease Registry
- Reports from the Data & Surveillance, Medical Services, Patient Navigation, and Education & Advocacy workgroups
- Approval of minutes from April 2, 2026
healthsickle-cellpublic-healthappointments
✓ Decided: Commission tables decision on replacing inactive member organization
The Louisiana Sickle Cell Commission approved the April 2, 2026, meeting minutes. Members voted to table a discussion regarding the replacement of the inactive Southwest Louisiana Sickle Cell Anemia Incorporated with the Etta Pete Sickle Cell Anemia Foundation. The meeting included reports on newborn screening data, a med alert bracelet pilot, and a proposed pediatric fever protocol.
- Approved April 2, 2026 minutes (unanimous)
- Tabled discussion on replacing SELASCA with EPSCAF (unanimous)
📄 From the agenda
Extracted text of the official agenda document (automated extraction — may contain OCR/formatting errors).
Jeff Landry
GOVERNOR
State of Louisiana
Louisiana Department of Health
Office of Public Health
Bruce D. Greenstein
SECRETARY
Bienville Building ▪ 628 N. Fourth St. ▪ P.O. Box 3214 ▪ Baton Rouge, Louisiana 70821-3214
Phone: (225) 342-8093 ▪ Fax: (225) 342-4848 ▪ ldh.la.gov
An Equal Opportunity Employer
AGENDA
I) Call to Order
II) Roll Call
III) Public Comments
IV) Approval of Minutes – April 2, 2026
V) Mandate Review & Announcements
A. Revised Statute 40:1125.1
B. Current Vacancies
• One parent of a person diagnosed with sickle cell disease
• One person diagnosed with sickle cell disease
• One medical professional caring for persons diagnosed with sickle cell disease
• One representative from Southwest Louisiana Sickle Cell Anemia, Inc.
VI) Old Business
VII) New Business
A. Southwest Louisiana Sickle Cell Anemia, Inc. & Etta Pete Sickle Cell Anemia Foundation
VIII) Reports
A. Sickle Cell Disease Registry
B. Data & Surveillance Workgroup
C. Medical Services Workgroup
D. Patient Navigation Workgroup
E. Education & Advocacy Workgroup
IX) Public Comments
X) Adjournment
Note: Presenters, members, and guests may submit requests for accessibility and accommodations prior to a scheduled meeting. Please
submit a request to [email protected] at least 2 weeks prior to the meeting with details of the required accommodations.
In lieu of verbal public comment, individuals may submit a prepared statement in accordance with Senate Rule 13.79. Statements shou …
Excerpt truncated on this listing page. Full text →
📄 From the minutes
Extracted text of the official minutes document (automated extraction — may contain OCR/formatting errors).
Jeff Landry
GOVERNOR
State of Louisiana
Louisiana Department of Health
Office of Public Health
Bruce D. Greenstein
SECRETARY
Bienville Building ▪ 628 N. Fourth St. ▪ P.O. Box 3214 ▪ Baton Rouge, Louisiana 70821-3214
Phone: (225) 342-8093 ▪ Fax: (225) 342-4848 ▪ ldh.la.gov
An Equal Opportunity Employer
MEETING MINUTES
I) Call to Order – Donna Thaxton called the meeting to order at 2:04 pm.
II) Roll Call/Introductions – A quorum was established.
• Members Present: Jacqueline Cummings, Ernest DeJean, Rodney Goldsmith (proxy for Cheryl Harris – Secretary
of the Louisiana Department of Health designee), Twarnette Hardison; Dr. Majed Jeroudi , Dr. Dana LeBlanc ,
Shannon Robertson, Aaron Ruffin (proxy for Erin Coleman – Sickle Cell Association of South Louisiana); Rosalind
Spain (virtual), and Donna Thaxton.
• Members Absent: Senator Regina Barrow, Simone Martin, and Representative Tammy Phelps.
III) Public Comments – none at this time.
IV) Approval of Minutes – April 2, 2026
• Twarnette Hardison motioned to approve the minutes as written, Ernest DeJean seconded, and the motion
passed unanimously with no abstentions.
V) Mandate Review and Announcements
• The Bureau of Family Health facilitator reviewed the Commission’s mandate (agenda attachment). Vacancy
Announcements – The following positions are currently vacant: one parent of a person diagnosed with sickle
cell disease; one person diagnosed with sickle cell disease; and one representative from Sout …
Excerpt truncated on this listing page. Full text →
Thu Apr 2, 2026
Louisiana Sickle Cell Commission
Louisiana Sickle Cell Commission to review registry and 2026 symposium
The commission will discuss the SCD Registry and the 2026 Statewide Sickle Cell Symposium. The body will also review current membership vacancies and receive reports from various workgroups.
- Review of SCD Registry
- Discussion of 2026 Statewide Sickle Cell Symposium
- Vacancies for one parent of a person with SCD, one person with SCD, one medical professional, and one representative from Southwest Louisiana Sickle Cell Anemia, Inc.
- Workgroup reports on Data & Surveillance, Medical Services, Patient Navigation, and Education & Advocacy
healthcaresickle-cellpublic-healthgovernment-appointments
✓ Decided: Louisiana Sickle Cell Commission approves February meeting minutes
The Commission unanimously approved the minutes from February 5, 2026. Members discussed upcoming symposium registration, current vacancies, and proposed legislation to revise Commission membership. Workgroups provided reports on patient navigation, data surveillance, and the development of a pediatric fever protocol.
- Approved February 5, 2026 meeting minutes (unanimous)
📄 From the agenda
Extracted text of the official agenda document (automated extraction — may contain OCR/formatting errors).
Jeff Landry
Bruce D. Greenstein
GOVERNOR SECRETARY
State of Louisiana
Louisiana Department of Health
Office of Public Health
LOUISIANA SICKLE CELL COMMISSION
Date: Thursday, April 2, 2026 Zoom: ldhophbfhgenetics.zoom.us/j/94922414794
Time: 02:00 PM – 03:30 PM Location: 628 North 4th Street, Room 173
Baton Rouge, LA 70802
The Bureau of Family Health is committed to promoting transparency, accessibility, and public engagement in all board, commission, and
council meetings. The link to access the meeting online is provided for convenience for members of the public as a part of that commitment.
AGENDA
I) Call to Order
II) Roll Call
III) Approval of Minutes - February 5, 2026
IV) Mandate Review & Announcements
A. Revised Statute 40:1125.1
B. Current Vacancies
One parent of a person diagnosed with SCD
One person diagnosed with SCD
One medical professional caring for persons diagnosed with SCD
One representative from Southwest Louisiana Sickle Cell Anemia, Inc.
V) Old Business
A. SCD Registry
B. 2026 Statewide Sickle Cell Symposium
VI) New Business
VII) Workgroup Reports
A. Data & Surveillance
B. Medical Services
C. Patient Navigation
D. Education & Advocacy
VIII) Public Comments
IX) Adjournment
NEXT MEETING: Thursday, June 4, 2026 at 2:00 PM
Bienville Building | 628 N. Fourth St. Room 118 | Baton Rouge, LA 70821
Note: The order of the agenda may not be followed exactly, to accommodate presenter schedules. Presenters, members, and guests …
Excerpt truncated on this listing page. Full text →
📄 From the minutes
Extracted text of the official minutes document (automated extraction — may contain OCR/formatting errors).
Jeff Landry
GOVERNOR
State of Louisiana
Louisiana Department of Health
Office of Public Health
Bruce D. Greenstein
SECRETARY
Bienville Building ▪ 628 N. Fourth St. ▪ P.O. Box 3214 ▪ Baton Rouge, Louisiana 70821-3214
Phone: (225) 342-8093 ▪ Fax: (225) 342-4848 ▪ ldh.la.gov
An Equal Opportunity Employer
MEETING MINUTES
I) Call to Order – Donna Thaxton called the meeting to order at 2:04 pm.
II) Roll Call & Introductions – A quorum was established.
• Members Present: Jacqueline Cummings; Ernest DeJean; Twarnette Hardison; Cheryl Harris (virtual);
Dr. Majed Jeroudi; D r. Dana LeBlanc; Representative Tammy Phelps ; Aaron Ruffin (proxy for Erin
Coleman – Sickle Cell Association of South Louisiana); Lucretia Stewart (proxy for Shannon Robertson
– Louisiana Primary Care Association); & Donna Thaxton.
• Members Absent: Senator Regina Barrow, Simone Martin, & Rosalind Spain.
III) Approval of Minutes – February 5, 2026
• Dr. Jeroudi motioned to approve the minutes as written, Twarnette Hardison seconded, and the
motion passed unanimously with no abstentions.
IV) Mandate Review & Announcements
• The Bureau of Family Health facilitator reviewed the Commission’s mandate (agenda attachment).
Vacancy Announcements – The following position s are currently vacant: one parent of a person
diagnosed with sickle cell disease ; one person diagnosed with sickle cell disease ; and one
representative from Southwest Louisiana Sickle Cell Anemia, Inc. The facilitator asked …
Excerpt truncated on this listing page. Full text →
Thu Feb 5, 2026
Louisiana Sickle Cell Commission
Louisiana Sickle Cell Commission reviews membership rules and selects leaders
The Louisiana Sickle Cell Commission meets to review its statutory membership requirements, discuss updates on the SCD registry and school nurse training, and select a chair and vice chair for 2026–2027. The meeting also includes public comments and subcommittee assignments.
- Review of Revised Statute 40:1125.1 on commission membership
- Report on Sickle Cell Disease (SCD) Registry
- Report on School Nurse Training for SCD
- Selection of 2026–2027 Chair and Vice Chair
- New subcommittee assignments
sickle-cell-diseasehealth-commissionmembershippublic-healthlouisiana
✓ Decided: Louisiana Sickle Cell Commission elects 2026-2027 leadership
The Commission elected Donna Thaxton as Chair and Ernest DeJean as Vice Chair for the 2026-2027 term. Members approved minutes from July and October 2025 and established new subcommittee assignments. The body also reviewed newborn screening data and school nurse training modules.
- Approved July 2025 meeting minutes (unanimous)
- Approved October 2025 meeting minutes (unanimous)
- Elected Donna Thaxton as 2026-2027 Chair (unanimous)
- Elected Ernest DeJean as 2026-2027 Vice Chair (unanimous)
- Established four new subcommittees: Data & Surveillance, Education & Advocacy, Medical Services, and Patient Navigation
📄 From the agenda
Extracted text of the official agenda document (automated extraction — may contain OCR/formatting errors).
Jeff Landry
Bruce D. Greenstein
GOVERNOR SECRETARY
State of Louisiana
Louisiana Department of Health
Office of Public Health
LOUISIANA SICKLE CELL COMMISSION
Date: Thurs, February 5, 2026 Zoom: ldhophbfhgenetics.zoom.us/j/93229238926
Time: 02:00 PM – 03:30 PM Location: 1450 Poydras Street, Room 2024
New Orleans, LA 70112
The Bureau of Family Health is committed to promoting transparency, accessibility, and public engagement in all board, commiss ion, and
council meetings. The link to access the meeting online is provided for convenience for members of the public as a part of that commitment.
AGENDA
I. Call to Order
II. Roll Call
III. Approval of Previous Meeting Minutes
o 07-2025 & 10-2025
IV. Mandate Review
o Revised Statute 40:1125.1
o Current Vacancies
1. One parent of a person diagnosed with SCD
2. One person diagnosed with SCD
3. One medical professional caring for persons diagnosed with SCD
4. One representative from Southwest Louisiana Sickle Cell Anemia, Inc.
V. Old Business
o Report: SCD Registry
o Report: School Nurse Training
VI. New Business
o 2026 - 2027 Chair & Vice Chair Selection
o New Subcommittee Assignments
VII. Public Comments
VIII. Adjourn
Next Meeting: Thursday, April 2 at 2:00 PM
NOTE: The order of the agenda may not be followed exactly, to accommo date presenter schedules. Presenters, members, and guests
may submit requests for accessib ility and accommodations prior to a scheduled meeting. Please submit a request to …
Excerpt truncated on this listing page. Full text →
📄 From the minutes
Extracted text of the official minutes document (automated extraction — may contain OCR/formatting errors).
J
eff Landry
GOVERNOR
State of Louisiana
Louisiana Department of Health
Office of Public Health
Bruce D. Greenstein
SECRETARY
Benson Tower ▪ 1450 Poydras St. Ste. #2001 ▪ P.O. Box 60630 ▪ New Orleans, Louisiana 70112
Phone: (504) 568-3504 ▪ Fax: (504) 568-3503 ▪ ldh.la.gov
An Equal Opportunity Employer
MEETING MINUTES
I) Call to Order – Donna Thaxton called the meeting to order at 2:05 pm.
II) Roll Call – Quorum present. (*virtual, +proxy).
A. Present: Erin Fulbright, Jacqueline Cummings*, Ernest DeJean, Twarnette Hardison, Cheryl Harris,
Majed Jeroudi, Dana LeBlanc, Shannon Robertson+ (Jackson), Rosalind Spain+ (Freeze-Bell), & Donna
Thaxton.
B. Absent: Regina Barrow, Simone Martin, & Tammy Phelps.
III) Approval of Minutes
A. Jeroudi motioned to approve the minutes from the July 2025 meeting, DeJean seconded, and the
motion passed unanimously with no abstentions.
B. Hardison motioned to approve the minutes from the October 2025 meeting, DeJean seconded, and
the motion passed unanimously with no abstentions.
IV) Mandate Review
A. The BFH facilitator reviewed Revised Statute 40:1125.1 (agenda attachment).
B. Vacancy Announcements – The following positions are currently vacant: one parent of a perso
n
di
agnosed with SCD; one person diagnosed with SCD; one medical professional caring for persons
diagnosed with SCD; and one representative from Southwest Louisiana Sickle Cell Anemia, Inc. The
Facilitator asked members to share these vacancies within their networks and …
Excerpt truncated on this listing page. Full text →