Louisiana Sickle Cell Commission public meetings in 2022
3 substantive meetings from 2022, with official agendas or minutes and plain-English summaries.
Louisiana Sickle Cell Commission
The commission will elect a new Chairman and Vice-Chairman and review vacancies. Members will discuss the conceptual framework for a state sickle cell disease registry and review Medicaid treatment services. The meeting also includes discussions on patient access to transformative therapies and a specialty license plate.
- Officer elections for Chairman and Vice-Chairman
- Review of House Bill No. 968 regarding a state sickle cell disease registry
- Review of Senate Bill No. 298 regarding Medicaid treatment services for SCD
- Discussion on Senate Concurrent Resolution No. 66 regarding access to curative therapies
- Discussion on House Bill No. 163 regarding a 'Sickle Cell Disease Association' license plate
The commission did not elect a chairman or vice-chairman because an in-person quorum was not present. Members received reports on the state sickle cell disease registry, Medicaid treatment reviews, and patient navigation deliverables.
- No action taken on electing chairman and vice-chairman (lack of quorum)
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is meeting on August 16, 2022, from 2:00 p.m. to 3:30 p.m. The agenda contains only procedural details such as date, time, location, and remote access options. No specific decisions or discussion items are listed.
- Meeting location: LDH Bienville Building, 628 North 4th Street, Room 118, Baton Rouge, LA 70802
- Remote access via Zoom and conference call (phone: 602-333-0032, access code: 265623#)
- Masks requested for in-person attendees due to COVID-19
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission will meet to conduct business as directed by Act 117 of the 2013 Legislative Session. The agenda does not list specific discussion topics or items for decision.
The commission discussed difficulties in identifying adult sickle cell patients and accessing hospitalized patients. Members reviewed several pending legislative bills and concurrent resolutions regarding registries, Medicaid care, and therapy access. No formal votes were recorded.
- Discussed House Bill No. 968 to establish a state sickle cell disease registry
- Discussed Senate Bill No. 298 to annually review Medicaid care for SCD enrollees
- Discussed House Concurrent Resolution No. 76 regarding equitable access to therapies
- Discussed Senate Concurrent Resolution No. 66 regarding regulatory barriers to therapies
- Discussed House Bill No. 163 to create a specialty license plate
- Proposed a standard release of information form for collecting client data
- Proposed a study resolution to evaluate treatment of SCD patients in emergency departments